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April 09, 2010

Comments

Helen

I've also been told I can't donate blood because I have RA and have taken methotrexate. When I went in to ask, they explained that even if I was not currently taking mtx, the fact that I had taken it in the past would preclude me from donating.

I'm not sure I understand why.

peter wa

That is a strange word to use - "unscientific". Until the original study is positively negated what is the problem with caution? The followup studies left enough questions unanswered. The Dutch study particularly is totally irrelevant - having studied a handful of tired, depressed people that picked themselves as having the disease. And excluded any that may have had viral infections. Funny way to find a virus. These guys need to get with the consensus case definition or stop pretending they're studying the same disease. There may not be a link to this virus. But that remains to be proven. Apparently one or two less superficial studies are underway in the US.     

3+speckled

peter wa

In these parts blood is a rare commodity and we are constantly being made aware of this by the blood collecting agencies. If this is the case, removing a group of patients from that pool may mean that someone on the other end will not get blood or platelets. The evidence connecting this virus with this disease is very slim. One study alone, which has been refuted by two others (note, the British study of 170 CFS patients found no patients at all carrying the virus). Even if the study was right it only shows an association and not yet cause and effect. And even if it was the cause we do not have evidence it can be transmitted through blood. And if we do consider it to be a threat we should screen for the 4% of the normal population that would seem to carry the same virus as well as fibromyalgia patients which the authors claim are likely infected. Being cautious is a good thing but is also the easiest thing to do. I hope they are being cautious for the patients, not for themselves.

3+speckled

Helen

That sounds odd. I'm going to try to see if that is the case here.

3+speckled

Helen,

Just checked the American Red Cross. They allow donation 4 weeks after stopping methotrexate and 3 months after leflunomide. Canadian guidelines aren't on their website.

Helen

Interesting - thanks for looking that up. This was a couple of years ago, so I wonder if things have changed - or perhaps the person I spoke to was mistaken.

Penelope

Many years ago I went to donate blood and was told that I couldn't give any because I had mono as a teenager. I'm not sure if that is still in effect.

One thing I can say is that I have never felt 100% back to the way I did pre-mono, and have always wondered what long-term effects might have come with the virus.

ftiens

Fatigue is generally common among adult of working group & becomes chronic if not treated.its sounds old but i think recent studies have been carrid on that. lets educate readers what chronic fatigue is all about, it is the most common name given to a variably debilitating disorder or disorders generally defined by persistent fatigue unrelated to exertion, not substantially relieved by rest and accompanied by the presence of other specific symptoms for a minimum of six months. Many patients do not fully recover from CFS even with treatment, and there is no universally effective curative option.Diets, physiotherapy, dietary supplements, antidepressants, pain killers, pacing, and complementary and alternative medicine have been suggested as ways of managing CFS.
http://www.tiensproducts.net
http://www.tienshealthshop.com

beli

this is a newly established syndrom that describes a combinations of symptoms like low grade fever, lymph node swelling, headache, muscle and joint pain..... u can visit http://www.tienseshop.com and http://www.tiensstore.net

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